Mum of boy who died of sepsis after being sent home tells of 'living nightmare' (2024)

The mother of a nine-year-old boy killed by sepsis days after he was sent home from hospital with flu has said his death was preventable.

Dylan Cope was sent home from the Grange Hospital in Cwmbran in December 2022 after being diagnosed with influenza and given a leaflet with advice for coughs and colds.

He died just over a week later at the University Hospital of Wales in Cardiff from sepsis.

Gwent Coroner Caroline Saunders recorded a narrative conclusion, saying there had been a ‘gross failure of basic care’. She added: ‘His death was contributed to by neglect.’

The inquest had examined whether Dylan’s appendicitis, which led to sepsis, could or should have been picked up earlier.

After falling ill, he saw his GP who suspected he had appendicitis and advised he go immediately to the Grange Hospital, the court heard.

While there, Dylan was seen by a paediatric nurse practitioner, who noted he had indicated the pain was mainly on his left-hand side, away from the appendix. Tests also showed he had influenza.

A breakdown in communication between two medical staff meant Dylan was not reviewed by a senior doctor and he was later discharged.

Speaking afterwards, Dylan’s mother Corinne Cope said her family believe he should not have died.

‘We appreciate the coroner’s findings,’ she said. ‘From our own investigations we already felt that Dylan’s death was preventable.

‘During the inquest process, we’ve painfully learned that the Grange University Hospital, touted as a “state-of-the-art super-hospital”, had what we saw as chaotic and shambolic processes that led to both extensive systemic and human errors.

‘We understand that no single person is entirely to blame for the multiple failures, but a true no-blame culture should still include accountability and learning.

‘Every individual must accept responsibility for their actions, regardless of whether their errors were accidental or unintentional.’

Mrs Cope, from Newport, added: ‘Dylan was our youngest son, a little boy with his whole life ahead of him.

‘As a family, we have to adjust to being four instead of five; our circle is forever broken. This pain will last our entire lives, not just through this hearing.

‘Dylan is central to all of this. The magnitude of losing his life has often been overshadowed by others minimising and thwarting attempts to uncover the truth.

‘For our child to suffer and die from an easily treatable condition is unimaginable for most parents. This is now our living nightmare.’

Cope family lawyer Firdous Ibrahim, from Leigh Day, said: ‘It is rare for a coroner to find neglect in an inquest involving concerns with medical treatment, which further highlights what a tragic and unavoidable loss this was.

‘The coroner’s conclusion found there were a significant number of failures by multiple healthcare professionals that would have prevented Dylan’s death.

‘While improvements in care have sadly come too late for Dylan, we hope that it means another family doesn’t have to go through similar heartache.’

A spokesman for Aneurin Bevan University Health Board, which runs the Grange Hospital, said: ‘We are truly heartbroken and our thoughts and deepest sympathies remain with Dylan’s parents and his whole family.

‘No parent should have to go through losing a child in such circ*mstances. We are all truly devastated.

‘Senior members of the health board have met with the family in person to apologise for the tragic circ*mstances leading to the loss of their beloved son.

‘The health board fully recognise that no apology will ever make up for the pain and suffering the family have experienced in losing Dylan.

‘Dylan’s tragic death was as a result of an organisational system failure that occurred in a department whilst under extreme pressure, with twice the number of patients normally attending, and was not attributable to any individual member of staff.

‘The health board takes full responsibility for what happened to Dylan. We are deeply sorry and remain fully committed to supporting the family in any way we can.’

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Mum of boy who died of sepsis after being sent home tells of 'living nightmare' (2024)

FAQs

What are the mental changes after sepsis? ›

But many are caught off guard by lasting effects, both physical and mental, that sepsis can leave behind. Post-traumatic stress disorder (PTSD), depression, and anxiety are not unusual among survivors.

What are the final stages of sepsis? ›

Septic shock is the last and most dangerous stage of sepsis. Sepsis can be divided into three stages: sepsis, severe sepsis and septic shock. Sepsis: Sepsis is life-threatening. It happens when your immune system overreacts to an infection.

How long does it take your body to fully recover from sepsis? ›

The duration of recovery from PSS is about two years or more. Recovery at hospital: Recovery from post-sepsis syndrome is initiated in the hospital by the physiotherapist, who helps the patients to carry out simple everyday activities on their own, such as: bathing, getting dressed, and walking.

What organs are damaged by sepsis? ›

Sepsis is a serious condition in which the body responds improperly to an infection. The infection-fighting processes turn on the body, causing the organs to work poorly. Sepsis may progress to septic shock. This is a dramatic drop in blood pressure that can damage the lungs, kidneys, liver and other organs.

How long does mental confusion last after sepsis? ›

Recovering from sepsis

You might continue to have physical and emotional symptoms. These can last for months, or even years, after you had sepsis.

What are the psychological responses to sepsis? ›

Initially, the sepsis survivors are almost euphoric that they have survived, which can later lead to chock and trauma when they realize that they could have died.

What is the timeline of sepsis death? ›

It can even be fatal. The disaster unfolds quickly. It can take as little as 12 hours from the earliest signs of infection to organ failure and death. For years, Northwell Health has made sepsis a clinical and research priority.

What is life expectancy after sepsis? ›

Patients with severe sepsis have a high ongoing mortality after severe sepsis with only 61% surviving five years. They also have a significantly lower physical QOL compared to the population norm but mental QOL scores were only slightly below population norms up to five years after severe sepsis.

What is the golden rule of sepsis? ›

NICE - the National Institute for Health and Care Excellence - urges hospital staff to treat people with life-threatening sepsis within one hour, in its quality standard. In clinical practice, this is often referred to as the 'golden hour' after diagnosis.

What is post-sepsis syndrome? ›

Post-sepsis syndrome (PSS) is a condition that affects up to 50% of sepsis survivors. It includes physical and/or psychological long-term effects, such as: Physical – Difficulty sleeping, either difficulty getting to sleep or staying asleep. Fatigue, lethargy.

What are the odds of surviving sepsis? ›

Someone in the United States is diagnosed with sepsis every 20 seconds. The risk of dying from sepsis increases by as much as 8% for every hour of delayed treatment. On average, approximately 30% of patients diagnosed with severe sepsis do not survive.

What to expect after sepsis for the elderly? ›

Older severe sepsis survivors are more than three times more likely to see a drop in cognitive (mental) abilities that can make it impossible for them to return to their previous living arrangements. This often results in admission into a chronic healthcare facility.

Which organ is usually the first to fail during sepsis? ›

Organ failure, including kidney failure, is a hallmark of sepsis. As the body is overwhelmed, its organs begin to shut down, causing even more problems. The kidneys are often among the first to be affected.

What are poor outcomes of sepsis? ›

It causes extensive inflammation throughout your body that can lead to tissue damage, organ failure and even death. Many different kinds of infections can trigger sepsis, which is a medical emergency. The quicker you receive treatment, the better your outcome will be.

What is the end organ to fail in septic shock? ›

The organs more frequently affected are kidneys, liver, lungs, heart, central nervous system, and hematologic system. This multiple organ failure is the hallmark of sepsis and determines patients' course from infection to recovery or death.

How does sepsis affect mental status? ›

Changes in mental status can range from no longer being able to perform complicated tasks to not being able to remember everyday things. The authors wrote, “… 60 percent of hospitalizations for severe sepsis were associated with worsened cognitive and physical function among surviving older adults.

Does sepsis affect mind? ›

Sepsis can cause acute and long-term brain dysfunction, namely, sepsis-associated encephalopathy (SAE) and cognitive impairment. SAE refers to changes in consciousness without direct evidence of central nervous system infection.

What are the life changing effects of sepsis? ›

What happens after Sepsis?
Lethargy/Excessive tirednessTaste changes/Teeth may be more brittle
Poor mobility/Muscle weaknessBreathlessness/Chest pains
Poor apetiteChange in vision
Swollen limbs (excessive fluid in the tissue)Changes in sensation in limbs
Joint and muscle painsExcessive sweating
3 more rows
May 30, 2023

What is brain fog after sepsis? ›

A new study at the University of Edinburgh is looking into the phenomenon known colloquially as 'brain fog'. These symptoms of confusion and hallucinations (delirium) are experienced by some survivors of sepsis in the days, weeks and months after their illness and sometimes for a prolonged period post discharge.

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